The impact of leukemia on quality of life and mental health: Insights from a case study examining physical, social, and cultural implications

Georgia Charalambous 1, Agathi Argyriadi 2, Athina Patelarou 3, Panagiotis Paoullis 4, Angelos Laliotis 5, Evridiki Patelarou 6, Dimitra Katsarou 7, Styliani Kotrotsiou 8, Ioannis Dimitrakopoulos 9 and Alexandros Argyriadis 10, *

1 Department of Nursing, Frederick University, Cyprus.
2 Frederick University, Cyprus.
3 Hellenic Mediterranean University, 714 10 Iraklio, Greece.
4 School of Health Sciences, Frederick University, Nicosia 1036, Cyprus.
5 Collaborating Academic Staff, School of Health Sciences, Frederick University, Nicosia 1036, Cyprus.
6 Department of Nursing, Hellenic Mediterranean University, 714 10 Iraklio, Greece.
7 University of the Aegean, Greece.
8 University of Thessaly, Greece.
9 Ioannis Dimitrakopoulos, Special Teaching Staff, Frederick University, Cyprus.
10 Alexandros Argyriadis Frederick University, Cyprus.
 
Research Article
International Journal of Science and Research Archive, 2024, 11(01), 1469–1477.
Article DOI: 10.30574/ijsra.2024.11.1.0202
Publication history: 
Received on 25 December 2023; revised on 30 January 2024; accepted on 02 February 2024
 
Abstract: 
Introduction: Leukemia presents a significant health challenge globally, affecting patients physically and mentally. The symptoms and adverse effects of treatments impact the health-related quality of life (QOL) of leukemia patients. Family caregivers, often family members, play a crucial role in care provision, especially in regions with limited professional nursing.
Aim: This research aimed to explore the QOL of a leukemia patient, the effects on the individual and family, factors contributing to well-being, social support networks, and healthcare resources. Insights gained could enhance the QOL for patients and families confronting this challenging disease.
Method: A qualitative case study approach was employed. The researchers focused on a single instance, utilizing semi-structured interviews. This technique allowed for an in-depth exploration of the experiences from anthropological perspectives. Data collection involved non-structured interviews with a 42-year-old woman diagnosed with acute leukemia, who had previously recovered from breast cancer.
Results: Leukemia patients and family caregivers face substantial psychological distress due to caregiving roles. Anxiety, stress, and depression in caregivers can be mitigated through tailored programs addressing their psychological needs. Such interventions are likely to positively impact the overall quality of life for families. Future research should explore specific factors contributing to psychological distress and evaluate the effectiveness of needs-based programs.
Conclusions: To enhance the well-being of both adult leukemia patients and their family caregivers, healthcare professionals should consider family-level intervention programs. The resilience demonstrated by individuals like Ms. Maria, who navigate challenges with determination, serves as inspiration for others facing acute leukemia. Further studies should delve into patient and caregiver factors affecting psychological distress, offering a comprehensive understanding of the holistic care needed for leukemia patients and their families.
 
Keywords: 
Leukemia; Quality Of Life; Family Caregivers; Psychological Distress; Needs-Based Program; Holistic Care
 
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